Cf Pioneers

Before you listen to this podcast, watch Adam Perform: Now Breathe Adam Young with Cystic Fibrosis dances solo with oxygen tank, on youtube. http://youtu.be/tuLDm1XKiGU Adam Young has been through a roller coast of highs and lows.   Now he is riding a wave that will hopefully take him back to the top.  Listen to Adam talk about his experience with being listed for a lung transplant, while trying to straighten out his life, come to terms with his addictions, and face mortality, all while cracking a smile and trying to stay possitive. 

The CF Pioneers Podcast is proud to present, the long lost Josh Mogren episode, part two, ENJOY!  Topics include marijuana, cross-contamination, depression, loss, CF connectedness, finding motivation and staying possitive, and so much more.

Josh Mogren is my guest in this very special episode of the CF Pioneers Podcast.  We discuss his life, growing up with CF, his sister, are men with CF suffering in silence, and more.  Stay tuned for episode 2 coming soon!

In this episode of the CF Pioneers Podast, hear me giggle a lot, what Olympic sports would be dangerous in the nude, learn what Michelles favorite sticky food is, and what it's like to run across the Golden Gate Bridge on a foggy Summers day. 

In this episode of the CF Pioneers Podcast, you will hear what bodily function motivated Michelle to run faster, dogs barking, and minor technical issues!  Michelle is going to be running the SF half marathon on July 29th!  So please come out to support her!  http://www.thesfmarathon.com/ You can follow Michelles progress here:  http://runlikechelle.blogspot.com/ Thanks for listening China!

Kris Benson and I discuss the CF Teen & Adult Retreat. CFRI's Teen and Adult Retreat brings together people with CF, their family members and friends, in a safe and healthy environment for a week of support, education, nutrition, exercise and meaningful activities. The theme of this year's retreat is CFRI RetrEAT: Nourishment for the Soul. It will take place at Vallombrosa Center in Menlo Park, CA, from July 29 to August 5. www.cfri.org/2012Retreat.shtml

Welcome to the CF Pioneers Podcast!  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  Thanks to JOECYF for being my guest.  You can find him on reverbnation.com, just search for JOECYF, you can also find him on facebook and myspace, whatever that is!    If you’d like to be a guest on the CF Pioneers podcast, or if you have any questions or comments, please contact me at cfpioneerspodcast@gmail.com.  Thank you for listening!

In this special installment of the CF Pioneers Podcast, Anna and Sara Modlin speak with me about the CFRI Teen & Adult Retreat that is being held July 31 - August 7, 2011 at the Vallombrosa Retreat Center, in Menlo Park, California.  We talk about the activities, what first timers can expect, our favorite memories about past retreats, and what keeps us coming back each year. For more information, go to www.cfri.org/TeenAndAdultRetreat.shtml

Mike Skoyec and I discuss what it was like growing up with CF, life pre and post transplant, CF camps, and my favorite topic, Bob Flanagan. Here's a link to Sunny Shores Sea Camp www.sunnyshoresseacamp.org Here's a brief history of kickboxing in America and links to differnt forms of martial arts.  www.kickboxing.com/styles/kickboxing.html Check out Bob Flanagan singing Super Cystic Fibrosis Song www.youtube.com/watch?v=9Y7JwWMB5kc Run time: 1 hour 20 minutes. Welcome to the CF Pioneers Podcast!  I am your host, Eric Marten.  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  I’d like to thank Mike Skoyec for being my guest.  And a big sho

Part 4 of my interview with Danielle Mandella. Welcome to the CF Pioneers Podcast!  I am your host, Eric Marten.  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  I’d like to thank Danielle Mandella for being my guest.  And a big shout out to fellow CFer Alex Jenkins for composing and performing the theme music.  To be a guest on the CF Pioneers podcast, or if you have any questions or comments, please contact me at cfpioneerspodcast@gmail.com.  Thank you for listening! Host/Producer:  Eric Marten Guest:  Danielle Mandella Music:  Alex Jenkins

Part 3 of my interview with Danielle Mandella. Welcome to the CF Pioneers Podcast!  I am your host, Eric Marten.  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  I’d like to thank Danielle Mandella for being my guest.  And a big shout out to fellow CFer Alex Jenkins for composing and performing the theme music.  To be a guest on the CF Pioneers podcast, or if you have any questions or comments, please contact me at cfpioneerspodcast@gmail.com.  Thank you for listening! Host/Producer:  Eric Marten Guest:  Danielle Mandella Music:  Alex Jenkins

Part 2 of my interview with Danielle Mandella. Welcome to the CF Pioneers Podcast!  I am your host, Eric Marten.  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  I’d like to thank Danielle Mandella for being my guest.  And a big shout out to fellow CFer Alex Jenkins for composing and performing the theme music.  To be a guest on the CF Pioneers podcast, or if you have any questions or comments, please contact me at cfpioneerspodcast@gmail.com.  Thank you for listening! Host/Producer:  Eric Marten Guest:  Danielle Mandella Music:  Alex Jenkins

Part 1 of my interview with Danielle Mandella. Welcome to the CF Pioneers Podcast!  I am your host, Eric Marten.  The purpose of this podcast is to highlight Pioneers in the Cystic Fibrosis community.  Advances in medicine and awareness, have increased the median life expectancy, which has allowed people living with CF, to pursue their dreams, and reach goals, that were unheard of just a few generations ago.  There is still a long ways to go, and many obstacles to overcome, but as we move forward, together we will make it another day.  I’d like to thank Danielle Mandella for being my guest.  And a big shout out to fellow CFer Alex Jenkins for composing and performing the theme music.  To be a guest on the CF Pioneers podcast, or if you have any questions or comments, please contact me at cfpioneerspodcast@gmail.com.  Thank you for listening! Host/Producer:  Eric Marten Guest:  Danielle Mandella Music:  Alex Jenkins