On Point With Alex Pierson

It's always heartbreaking when you hear of a life changing condition being diagnosed to a child. Even more so when it's your own. Edith Lemay and Sebastien Pelletier are the parents of four children, three of which, have been diagnosed with retinitis pigmentosa, a rare genetic condition that causes a loss or decline in vision over time. So in order to let the children experience life to their best before they can no longer see, they decided to take their kids on a world tour. Namibia, Zambia, Tanzania, Turkey, Mongolia and now Indonesia, are all of the places they've been to thus far. Edith Lemay joined Alex to discuss this trip and what it means to her kids. Learn more about your ad choices. Visit megaphone.fm/adchoices